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Speech Therapist & Galactosemia Parent: Feat. Zara & Fin Betts
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1:02:48
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Speech Therapist & Galactosemia Parent: Feat. Zara & Fin Betts
9 days ago
1:37:16
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The Voice of the Patient Report: PFDD Meeting
23 days ago
4:10:40
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Patient Focused Drug Development Meeting - Full Video
23 days ago
1:08:59
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The Science Behind Babbling with Dr. Beate Peter
about 1 month ago
1:12:57
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Primary Ovarian Insufficiency & Purple Sweet Potatoes with Dr. Synneva Hagen Lillevik
about 1 month ago
1:20:22
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Understanding the Galactosemia Diet with Dr. Sandy Van Calcar
about 2 months ago
1:20:07
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GLOW 2025 feat. Jamie Heigel
about 2 months ago
1:23:14
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When Every Day is Advocacy feat. Gillian Sapia
2 months ago
1:21:17
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Navigating Life and Fundraising for Galactosemia – Feat. Brittany Cudzilo
2 months ago
1:19:04
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A Delayed Diagnosis & A Rare Complication - Feat. Becca Jones
3 months ago
1:14:20
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New Treatments, Big Questions: What’s next for Galactosemia? Feat. Dr. Estela Rubio Gozalbo
3 months ago
1:24:37
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Babble Bootcamp: Speech Support & Early Intervention feat. Dr. Nancy Potter
3 months ago
55:55
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The Battle for NIH Funding: Impact on Galactosemia Research
4 months ago
1:18:26
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IEPs and 504s: Understanding Educational Support ft. Dr. Karolyn Maurer
4 months ago
1:50:46
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The Road to a Cure ft. Dr. Gerard Berry
4 months ago
1:14:51
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Red Stickers, Green Stickers: A Life with Galactosemia ft. Keith Topper
4 months ago
1:41:54
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Inside a Galactosemia Research Lab - ft. Dr. Judith Fridovich-Keil
5 months ago