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Gene Therapy for Galactosemia: Feat. Mandy and Clayton from BridgeBio
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1:05:01
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Gene Therapy for Galactosemia: Feat. Mandy and Clayton from BridgeBio
3 months ago
46:50
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Maureen Bell's Story of Living with Galactosemia
3 months ago
1:24:15
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Exploring Bone Marrow Transplant in Galactosemia
4 months ago
36:16
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Navigating State Services and First Foods: Elliot’s One-Year Update
4 months ago
1:04:31
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Recapping our Tour of a Gene Therapy Lab - with Jamie Hiegel
6 months ago
1:23:43
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Reading Test Results: Feat. Dr. Michael Gambello & Dr. Tricia Hall
6 months ago
1:02:48
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Speech Therapist & Galactosemia Parent: Feat. Zara & Fin Betts
7 months ago
1:37:16
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The Voice of the Patient Report: PFDD Meeting
7 months ago
4:10:40
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Patient Focused Drug Development Meeting - Full Video
7 months ago
1:08:59
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The Science Behind Babbling with Dr. Beate Peter
8 months ago
1:12:57
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Primary Ovarian Insufficiency & Purple Sweet Potatoes with Dr. Synneva Hagen Lillevik
8 months ago
1:20:22
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Understanding the Galactosemia Diet with Dr. Sandy Van Calcar
8 months ago
1:20:07
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GLOW 2025 feat. Jamie Heigel
8 months ago
1:23:14
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When Every Day is Advocacy feat. Gillian Sapia
9 months ago
1:21:17
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Navigating Life and Fundraising for Galactosemia – Feat. Brittany Cudzilo
9 months ago
1:19:04
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A Delayed Diagnosis & A Rare Complication - Feat. Becca Jones
9 months ago
1:14:20
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New Treatments, Big Questions: What’s next for Galactosemia? Feat. Dr. Estela Rubio Gozalbo
10 months ago
1:24:37
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Babble Bootcamp: Speech Support & Early Intervention feat. Dr. Nancy Potter
10 months ago
55:55
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The Battle for NIH Funding: Impact on Galactosemia Research
10 months ago
1:18:26
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IEPs and 504s: Understanding Educational Support ft. Dr. Karolyn Maurer
10 months ago
1:50:46
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The Road to a Cure ft. Dr. Gerard Berry
11 months ago
1:14:51
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Red Stickers, Green Stickers: A Life with Galactosemia ft. Keith Topper
11 months ago
1:41:54
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Inside a Galactosemia Research Lab - ft. Dr. Judith Fridovich-Keil
11 months ago