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Maureen Bell's Story of Living with Galactosemia

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46:50
Maureen Bell's Story of Living with Galactosemia
1 day ago
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1:24:15
Exploring Bone Marrow Transplant in Galactosemia
16 days ago
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36:16
Navigating State Services and First Foods: Elliot’s One-Year Update
23 days ago
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1:04:31
Recapping our Tour of a Gene Therapy Lab - with Jamie Hiegel
2 months ago
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1:23:43
Reading Test Results: Feat. Dr. Michael Gambello & Dr. Tricia Hall
2 months ago
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1:02:48
Speech Therapist & Galactosemia Parent: Feat. Zara & Fin Betts
3 months ago
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1:37:16
The Voice of the Patient Report: PFDD Meeting
4 months ago
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4:10:40
Patient Focused Drug Development Meeting - Full Video
4 months ago
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1:08:59
The Science Behind Babbling with Dr. Beate Peter
4 months ago
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1:12:57
Primary Ovarian Insufficiency & Purple Sweet Potatoes with Dr. Synneva Hagen Lillevik
4 months ago
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1:20:22
Understanding the Galactosemia Diet with Dr. Sandy Van Calcar
5 months ago
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1:20:07
GLOW 2025 feat. Jamie Heigel
5 months ago
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1:23:14
When Every Day is Advocacy feat. Gillian Sapia
5 months ago
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1:21:17
Navigating Life and Fundraising for Galactosemia – Feat. Brittany Cudzilo
6 months ago
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1:19:04
A Delayed Diagnosis & A Rare Complication - Feat. Becca Jones
6 months ago
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1:14:20
New Treatments, Big Questions: What’s next for Galactosemia? Feat. Dr. Estela Rubio Gozalbo
6 months ago
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1:24:37
Babble Bootcamp: Speech Support & Early Intervention feat. Dr. Nancy Potter
6 months ago
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55:55
The Battle for NIH Funding: Impact on Galactosemia Research
7 months ago
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1:18:26
IEPs and 504s: Understanding Educational Support ft. Dr. Karolyn Maurer
7 months ago
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1:50:46
The Road to a Cure ft. Dr. Gerard Berry
7 months ago
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1:14:51
Red Stickers, Green Stickers: A Life with Galactosemia ft. Keith Topper
7 months ago
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1:41:54
Inside a Galactosemia Research Lab - ft. Dr. Judith Fridovich-Keil
8 months ago